Band of builders give ‘new chapter’ to motor neurone disease sufferer

Band of builders give ‘new chapter’ to motor neurone disease sufferer

A kind-hearted group of tradesmen and women have given a fellow builder suffering from Motor Neurone Disease a “new chapter” by renovating his home and garden so he can spend precious time with his family.

Electrician and general builder Jamie Thompson was diagnosed with Motor Neurone Disease in October 2014, aged 45, and given just three years to live.

The 49-year-old from Cradley in Herefordshire has surpassed medics’ expectation but has been confined to areas that his motorised wheelchair can access. The situation left him unable to get into his garden to spend time with two-year-old son Ollie and daughters Kiya, 12, and Amber, seven, who are from a previous relationship but visit regularly.

After hearing about Jamie’s situation, two organisations who help members of the UK construction industry joined forces to help, supported by builders’ merchant Jewson.

Band of Builders, a charitable organisation that carries out projects and adaptations to help tradespeople and their families, teamed up with the Lighthouse Construction Industry Charity, which offers financial and mental wellbeing assistance to construction workers, to overhaul Jamie’s garden and renovate his kitchen.

While Jamie and Sarah stayed at a nearby hospice, volunteers from Band of Builders descended on the home to carry out the work over eight days.

Jamies Project

The project – the seventh carried out by Band of Builders in the last 12 months – saw around 30 tradesmen and women from across the country give up their time for free to completely replace the kitchen at Jamie and Sarah’s home, as well as landscaping the garden to make accessible paths for Jamie’s wheelchair and a seating area where the family can spend time together.






During the week, the volunteers saw an outpouring of support from the local community, from free accommodation provided by neighbours, the school where Sarah works and local pubs, to deliveries of food and drinks from local restaurants, keen home bakers and Jamie and Sarah’s friends and family.

The transformation was revealed to the couple in an emotional handover attended by the volunteers, Jamie and Sarah’s family and friends and neighbours from the village.

Jamie said: “What a transformation! It was a pleasure to meet every single person involved in this project. It has opened up what has become an increasingly small world as an MND sufferer. My heartfelt thanks go out to all three organisations – Band of Builders, The Lighthouse Charity and St Michael’s Hospice, who have helped make this project such a huge success. I feel we have made new friends for life. A huge thanks also to all family, friends and the community who supported the builders throughout the week.”

Sarah added: “What Band of Builders have done is nothing short of a miracle. This really is a new chapter for Jamie and us. Until now Jamie’s been virtually confined to one room. The changes that have been made thanks to this project means he can now get into the kitchen and out onto the decking. More importantly, he can actually get down into the garden to spend time with Ollie and the girls. Until now he’s had to watch from afar, but he can actually be with them now and make some happy memories.”

The project was partially funded by the Lighthouse Charity, with some of the building materials donated by Jewson as part of the Trade Hero prize awarded to Band of Builders’ founder Addam Smith during the 2017 Building Better Communities.

Richard Patchesa, trustee at Band of Builders, said: “When we first met Jamie, we realised that not only was he limited by MND, but by the lack of accessibility to some of the most sociable areas of his home. By installing a new kitchen we’ve made one of the most sociable rooms in the house accessible to Jamie again, and he can finally spend time in his garden making memories with his family. For each and every person involved in the project, seeing Jamie and Sarah’s faces is more of a reward than any day rate and if we’ve made just a tiny difference to their lives then we’ll be happy.”

Bill Hill, CEO of the Lighthouse Club Charity, said: “We are delighted to be able help Jamie and his family through the joint partnership with Band of Builders. We receive no public finance and rely on the support from within the industry to help us provide vital support services to construction families in need like Jamie so he can enjoy precious time with his family.”


  1. Please find attached images for media use. For more images and video material please contact Ellen Manning from Band of Builders on 07515 717173
  2. The project used donated materials, a grant from the Lighthouse Club and cash from Jewson won by Band of Builders founder Addam Smith as part of its Building Better Communities Awards. Other materials, accommodation and food and drink were kindly donated by the following companies and individuals: Leekes, Bilston; Jamie and Sarah’s neighbours; Abby & Immy at the Exchange Inn; Malvern St James School; Lee Brothers; Butlers Fish and Chips; Steve’s Soft Whip; County Window & Conservatories (Glass); Warren’s Gaffer John Morgan Window Wise; the Netball team for helping hand; Bonomini Carpets (Stuart Bonomini Flooring); British Gypsum; Payton’s Solicitors; Fix Radio; Gandalf Engineering; Deborah Rhodes and Weber; Andy Parsons CTG Gloucester; Ryan Hill Plasterers One Stop Shop; Scot & Will Thames Covers; Leyton Blocks Wrexham; Dyfed Prichard Welding; Dafydd (Skip Company; Richard’s Nurseries; Chipper Grinder; Antiques Shop; Olive Tree, Ledbury; the Goodwin family; Waitrose (Malvern); Codfather (Ledbury).


Jamie’s project is the latest project undertaken by Band of Builders, a charitable organisation that aims to help UK construction workers and their families. Band of Builders was formed after the initial fundraising efforts by Addam Smith to help his friend Keith Ellick. It is now applying to become a registered charity that will help members of the UK-based construction industry and their associates through projects.


Last year, the charity’s Construction Industry Helpline supported over 1,500 construction families in crisis and over 400 families were granted £735,000 of emergency financial help. Of the 1,500 calls into the helpline, 1,100 of these were given advice and support on issues ranging from stress and depression to legal, debt management and taxation advice.

The Charity receives no public finance and relies on the support from within the industry and its nationwide network of 21 independent, volunteer managed Regional Lighthouse Clubs to fund its charitable work


Since opening its first branch in 1836, Jewson has expanded to offer the widest range of products and materials from everyday items like timber and bricks, to landscaping and roofing. Across the UK, the builders’ merchant also has specialist tool hire and kitchen and bathroom centres. For more information visit:

The Building Better Communities competition run by Jewson supports building projects up and down the country. It is divided into several categories, including a range of regional prizes. The Trade Hero category was new for 2017, celebrating construction workers who play a major role in their community.